The Cancer Chronicle

Seriously, after having a double mastectomy you start feeling a little secure thinking you are finally free and clear. Even though that surgery was at the behest of a recurrence of the breast cancer I’d been diagnosed with six years previously, I truly was surprised when the ophthalmologist broke the news to us – you have cancer in your eyes.

I’ll recap for those who haven’t read the post on Facebook. The rest of you feel free to skip ahead…

July 11, 2019 – edited for brevity.

The third week of May I began suffering terrible migraines and had a shadow in my right eye. I ended up at the retina specialist thinking I had a torn retina. After a full day of angioplasty, ultrasound and many many photos, it turns out I have lesions in both of my eyes. Tiny little tumors, specifically, metastatic breast cancer.

An MRI and a PET scan later reveal many (13?) small lesions (cancer) on bones in my shoulders, in lymph nodes under my collar bone and breast bone, on four vertebrae, and on my pelvis and femur, besides the lesions in both my eyes.

I am fortunate in that I have the best medical institutions at my disposal. I am now, thanks to Jen, under the care of a team of doctors at Mass General Hospital.

Do not believe the appalling statistics concerning MBC. I am not a statistic and they do not necessarily relate to me, or my prognosis. Please read Jay Gould’s essay “The Median Isn’t the Message,” which sums up my attitude on that subject.

No worries, I’m not going anywhere just yet.

July 15, 2019

That catches you up to this weekend’s turn of events. I began experiencing a constricting ball of pressure in my mid-back. After exploring the usually litany of ailments I suffer from, I came to the conclusion that the pain must be from one of the tumors.

Today’s visit with my radiology oncologist, Dr. Rachel Jimenez, confirmed as much. She has arranged for me to have a short course of radiation, five doses. I’ll be going to MGH Danvers, thankfully avoiding the drive to Boston for those six visits.

My medical oncologist, Dr. Dejan Juric wants to start meds asap. We are awaiting blood biopsy results. The clinical trial drug will have to wait til I have bone biopsy.

I’m not sure if it is being put off until I have the radiation or not, but we are still awaiting a biopsy app’t. They will be going in to my hip for that one. They need to type my tumor (previously ER+, HER2-) in case it has changed/mutated and they need to do a further study for a new receptor panel.

The two drugs I know I’ll be taking are Fulvestrant (Faslodex) which is a medication that blocks and damages estrogen receptors that is sometimes used in the treatment of metastatic breast cancer. And CDK 4/6 inhibitor palbociclib (Ibrance). I’ll tell you about the third clinical trial drug when I find out if I can take it. I’ll write more about the drugs when I start them.

I also have an app’t with MGH’s oncology ophthalmologist to check in and get him on my team. For now, I don’t need any other treatment but the hormone regime for my eyes.

Basically, I have an incurable disease that we’ll treat as a chronic illness. As each symptom appears, it will be evaluated and treated. Currently, I have breast cancer tumors that will be treated with a cocktail of drugs that could put me in to remission, or partial remission or in the least, halts the progression. The radiation will kill the lesion causing me pain.

Then we wait.


A Versatile Blogger

Versitile_Blogger

 

I’m honored!

Is that what you call me?  A Versatile Blogger! Well, that’s one way to phrase what I do around here. I’ve deliberately not defined the content, freeing myself to write about whatever strikes my fancy, or incurs my wrath.

 

Expressing My Gratitude

I’d like to thank Chris @ Life Your Way for this “major award” and her support of My Dubious Views blog, not to mention her humor, and generous spirit.

 

The Rules for the Versatile Blogger

1) Thank the blogger who nominated you and include a link to their site.

2) Add the Versatile Blogger Award picture to your blog post.

3) Nominate 7 fellow bloggers that you’ve recently discovered or follow regularly and include a link to their site.

4) Let them know you have nominated them

5) Share 7 random facts about you

 

My Nominations for Versatile Bloggers

Norine @ Don’t Put Lizards in Your Ears You can’t go wrong with that advice.

Yes, that’s only five — I’m a rebel and a rule breaker.

Seven Random Facts About Me:

  1. I’m originally from Dorchester.
  2. I’ll have been married for twenty years this October. Crickey!
  3. I’ve been a dot etcher,
  4. And a lapidary.
  5. I’m a breast cancer survivor.
  6. Brunch is my favorite meal and social activity.
  7. I fantasy garden.

 

My Next Big Thing

Okay, Chris @ Life Your Way,  I’ll play. I’m flattered that you think of me, I just feel like my blog doesn’t warrant the attention—yet. But since I do have a book I’m working on I don’t feel so insecure answering.

The Next Big Thing

10 questions about my current writing project.

1) What is the working title of your book or project?

The Illusion of Marriage

2) Where did the idea come from for the book or project?

I can’t pinpoint a specific spark but it started with an opening and ending scene—I envisioned this story as a movie. I needed a plot for NaNoWriMo2011 and used this idea.

3) What genre does it fall under, if any?

Fiction: Literary/Family Drama

4) If applicable, whom would you choose to play your characters in a movie?

Jacob: Jamie Bell or Emile Hirsch, Helen: Bryce Dallas Howard-someone who can pull of uptight but warm.

5) What is the one-sentence synopsis of your manuscript or project?

Til death do us part: marriage meets reality.

6) Will your book be self-published or represented by an agency?

Yes, unless there is a third option by then.

7) How long did it take you to write the first draft of your manuscript?

The first 50k I did for NaNoWriMo2011. I pretended to work on it for a few month of 2012, but now I’m aiming to finish up the first draft by Feb 2013. At 60993, I’m guessing I have another 20-25k to write.

8) What other book or stories would you compare this story to with the genre?

I’m blanking on anything specific. It’s a tale of marriage like any other and unique as all of them are. The lovely Jessica Ruston has a list of fiction books on marriage on her blog.

9) Who or what inspired you to write this book or story?

A death in the family prompted an examination of the lives around me, the struggles we all go through the triumphs and such.

10) What else about the book or story might pique the reader’s interest?

There are several secrets being kept that possibly doom a relationship, a few unforgivable acts forgiven, a postpartum psychotic episode, delicious meals, baked goods, frolics in the sun, and a dog named Bachman.

Geez, that almost sounds interesting. I’d better get back to work.

Your Next Big Thing

Tagging others is tricky since there’s so much inbreeding around here, I don’t know anyone who hasn’t participated. So dear readers (all two of you) there is no obligation to play, but if you’d like to—copy/paste the questions, fill in your answers, post a link to your blog in my comments. Or if you’ve already blogged your, My Next Big Thing, and would like to get more traction, feel free to post a link in the comments.

 

Glad Tidings and a Peaceful New Year to You All

It’s been a tough week for everyone. Our hearts are heavy with grief and confusion. It’s our nature to dissect these tragedies for want of a reason and to hold someone responsible. In our haste for a resolution we lash out at everyone.

This is the fourth post I’ve written this week and the only one you’ll be reading as I can only bring myself to wish you all glad tidings since the other posts are unpublishable in their current form. In them I take out my anger on those I’d like to blame, those who’d like to blame me, and those who likely deserve some of the blame for the Newtown tragedy.

But, for now I think wishing everyone well, serves us all better than wishing anyone ill.

Glad Tidings and a Peaceful New Year to You All.

Merry Christmas!

Joyous Kwanzaa!

Chag Chanukah sameach!

May the new year bring us unity, understanding and tolerance.

Love Always,

Lynne

First Steps

Some day soon, words will appear and you will know me.