But, I Feel Better!

Darn, I was supposed to start cycle two today but my white blood cell count and neutrophils are too low, though they are slightly up from last week. Protocol, however is the boss here so I’ll be off the palbociclib for another week (a cycle is 4 weeks, palbo is 3 weeks on, one week off, GDC is everyday all 4 weeks, and Fulvestrant is 1x a month on 1st day of cycle).

The concern now is this screws up the timing of the next cycle and those that follow. But, that isn’t my problem to solve so while the research staff figures out how to rectify the situation, and juggles my appointment schedule, I shall regale you with tales of the last few weeks.

Side-Effects Strike Back

Side-effects have come to plague me since I last wrote. Some worse than others. Intestinal distress has struck (without warning…fun) but we seem to have found a measure of control between the Imodium and not eating too much at once. That’s pretty easy since I don’t have much of an appetite anyway.

A mouth sore that had been torturing me for two weeks has completely healed. I lost my sense of taste, but that has returned to about 70% since being off the palbo for the last week. I’m guessing that will be a permanent two-weeks on, two weeks off kind of thing. I can live with that. The idea that I wouldn’t be able to taste anything the rest of my life was a tough one, having it even partial back is a big relief.

My blood sugar is normal, no worries there. A testament that anyone with prediabetes or diabetes would be greatly helped by adopting a Keto Diet. It has saved me from suffering hypoglycemia, a side-effect of the GDC and having to take yet another drug. I’ll be posting about my own experience with this new lifestyle later.

My hair can’t decide if it’s falling out or not. One week it seems to be dropping out at twice the rate as it typically does, then returns to normal. Time will tell. I don’t care much, I look great bald.

Between the mouth sore, intermittent diarrhea and loss of appetite I haven’t quite worked out what to eat on keto when I don’t feel well. Anyone with ideas for that, I’m all ears. I can only eat so much tuna salad and scrambled eggs.

The Facts of Life

LOL, are we in TMI territory yet? Oh well, you take the good, you take the bad here.

Here’s the good. Declan in a kilt! Oh my heart. He was so adorably handsome. The whole wedding party looked terrific, especially, Kayla and Chris (Declan’s parents, the bride and groom). We all agreed it was one of the best wedding we’ve ever been too. A picture perfect day all around.

The venue was lovely, the hotel was laid out perfectly for hanging out and greeting people in the lobby and lounge. The weather cooperated. Eva and Lillian were in charge of Declan and his 17mth-old sister Keira. Paul and I got to hang out with them quite a bit too.

We’ve know the Danheys, the bride’s family, since we moved in next door to them 24 years ago, and have been fortunate enough to be included in the major celebrations throughout the years. All of which means we are very familiar, friendly and in love with the extend family. And seeing that I’ve been caring for Declan for the last 6 years, I’ve gotten to know and feel close to the Murrays, Chris’s family, as well. All of which made the weekend feel like one big family celebration. As it should be.

Baby, Baby, Baby

This week I got to see my friend Sara when she came down to fill out her baby registry. I am keeping busy planning her baby shower, making decor, and menu planning, my forte, and I’m grateful for such a happy occasion to keep me distracted. And to celebrate and honor Sara, Ben and their soon to be little man.

Write This Way

NaNoWriMo (National Novel Writing Month) is nearing. I “won” 2010-2016, participated in 2017 and 2018, making this my tenth year. I’m not sure if I’m writing something new or reworking one of the previous years work. But I will be hosting one night a week here at home, and as usual, hosting the Kick-Off Party, The All Night-All Write, and TGIO and Reading. Whew!

Truthfully, I’m having a hard time caring about my writing. Not to get maudlin on you, but I’m struggling to find it relevant. I have promised to finish the novels I have started so they can at least be read by the few who care to. It’s the least I can do I guess after spending so much time being a “writer,” the last 10 years.

Misconceptions

Metastatic breast cancer is incurable, thought treatable. I will be having a CT at the beginning of Oct. This will be the first indication as to whether these drugs are working to stop the cancer’s growth. That is why it is so important to manage the side-effects. The cancer itself isn’t the problem presently.

I’m sure I wrote about this before but I want to clear up something. One question cropped up several times over the last week, “How long will you be on these meds?” The answer is “Forever or until they stop working.”

More often than not it is the side-effects that people find intolerable, physically and mentally and in despair give up on treatment. My research team tries to save me from going down that path, and keep me as healthy as I can be. I truly appreciate their attention and concern.

I can easily see how depressing life becomes when you aren’t able to enjoy the things you normal take for granted (LOL, words to the wise…be grateful for trauma free eating and pooping).

Nothing to See Here

Nothing dramatic happening otherwise, at least not to me. I’ve had my sister’s two flooffy pups this week while she vacations in Paris and Nice. Strangely enough, that is also where the honeymooners have been this week.

I love you all. Thank you for reading. Thank you for responding, writing, calling, sending me gifts. It is humbling to have so many people hoping, praying and wishing me well. Your kindness is deeply meaningful to me. Life is Good.

Comments

  1. I am so proud to call you my friend. I’m grateful that you are part of my life and that you have so many others in your life that I know feel the same way about you! With that said, YES, my friend can ROCK a bald head.

  2. Rebecca Morrissey says

    <3 <3 <3

  3. Rebecca Morrissey says

Speak Your Mind

*

This site uses Akismet to reduce spam. Learn how your comment data is processed.